Usher Syndrome: Resources

Local Resources

Nevada Dual Sensory Impairment Project
Department of Educational Specialties/299
University of Nevada, Reno
Reno, NV 89557
(775) 784-6471 (voice)
(775) 784-4384 (fax)
1-877-621-5042 (toll free in Nevada)
[www.unr.edu/educ/ndsip]
Project Director--MaryAnn Demchak, Ph.D.

Bureau of Services to the Blind and Visually Impaired--Reno
1325 Corporate Blvd.
Reno, NV 89502
(775) 828-8100 (voice)
(775) 688-2598 (fax)
[http://detr.state.nv.us/rehab/reh_bvi.htm]

Bureau of Services to the Blind and Visually Impaired--Las Vegas
628 Belrose Street
Las Vegas, NV 89107
(702) 486-5333 (voice)
(800) 781-8387
(702) 486-5253 (fax)
[http://detr.state.nv.us/rehab/reh_bvi.htm]

Bureau of Services to the Blind and Visually Impaired--Carson City
1929 N. Carson St.
Carson City, NV 89706
(775) 684-0355 (voice)
(775) 684-0361 (fax)
(800) 607-6564 (toll free)
[http://detr.state.nv.us/rehab/reh_bvi.htm]

Bureau of Services to the Blind and Visually Impaired--Elko
172 Sixth St.
Elko, NV 89801
(775) 753-1930 (voice)
(775) 753-7212 (fax)
(800) 395-0660 (toll free)
[http://detr.state.nv.us/rehab/reh_bvi.htm]

National Resources

American Association of the Deaf-Blind
8630 Fenton St. Suite 121
Silver Spring, MD 20910-3803
(301) 495-4402 (voice)
(301) 495-4403 (TTY)
(301) 495-4404 (fax)
[(e-mail) AADB-Info@aadb.org] (website) [www.aadb.org]

Boys Town National Research Hosptial
Usher Syndrome Project
555 North 30th Street
Omaha, NE 68131
(402) 498-6556 (voice & TTY)
(402) 498-6631 (fax)
[http://www.boystownhospital.org/research/molecularstudies/
Pages/UsherSyndrome.aspx
]

DB-LINK - Information on Deaf-Blindness
National Consortium on Deaf-Blindness
345 N. Monmouth Ave.
Monmouth, OR 97361
(800) 438-9376 (voice)
(800) 854-7013 (TTY)
[(e-mail)dblink@tr.wou.edu]
[http://www.nationaldb.org]

RP Foundation Fighting Blindness
11435 Cronhill Dr.
Owings Mills, MD 21117-2220
(410) 568-0150 (voice)
(800) 683-5555 (toll free)
(800) 683-5551 (TDD)
[(e-mail) info@fightblindness.org]
[www.blindness.org]

Helen Keller National Center for Deaf-Blind Adults
Region 9 Office
6160 Conerstone Ct. East
San Diego, CA 92121
(858) 623-2777 x 389 (voice)
(858) 646-0784 (TTY)
(858) 642-0266 (fax) [www.hknc.org]